...because you thought Sweden was Switzerland!

Friday, October 29, 2010

Where did October go?

It's a long story. I spent the end part of September and the first half of October in the hospital with Marcus; he came home mid-October with not-so-good prospects; we had troubled nights, and there were a couple of acute visits to the hospital. It's just these past two weeks that things are going back to normal again. The whole month felt like a long, uncertain time. But we are recovering from the shock and getting to our senses to meet the future — and suddenly it's nearing November.

Big sigh.

When Marcus lay in the hospital and was in the mood for light reading, he told me he'd sometimes read my old blog entries. When I started this blog, Marcus and I had just about moved in together — so I guess you can say that this blog is ours in a way. All those five years, and great small adventures.

Today, I got a message today from someone who reads my blog, and she was asking me about something unrelated to blogging. I realized then how many people I actually met through this blog who I never would have met otherwise. I've even met some of you personally. You're not a big bunch of readers; I'm not a bestselling author. But that you can share in the things we do and see and experience is one of the strange and great things about the internet.

So I might as well say it here. The long and short of it is, that Marcus' stem cell transplant didn't work. The transplant (cord blood stem cells) did not survive, so the original diseased bone marrow grew back. They're giving the stem cell transplant a re-try — we look like we have at least a year and not one month as we first thought — and if nothing acute happens in the meantime, there might be time to look for a real bone marrow donor, or wait until stem cell research progresses.

... That's a kind of a dry way of putting it, but if you're read my blog entry on hope, you might guess all the feelings going inside me. Despite everything, life is not as hopeless as it might look.

When I talk to people about Marcus' condition, they sometimes ask if it's possible to donate bone marrow, and that I should just ring them and they'll come right to their hospitals. Realistically, the chances of an unrelated donor matching one's own marrow is very slim, even though that chance exists. So, I've always politely told them about the slim chances, plus that there is increased risk of Graft-versus-host disease with a live donor's stem cells in comparison to umbelical cord blood cells. So, I'm not sure if rallying up friends would give a solution for Marcus personally. But if you'd like to know more about bone marrow donation — it could be of use to more people — you can read up how this works in your countries. You can either sign up for a register, or if you're expecting, ask about the possibilities of donating the baby's umbelical cord blood.

Other than that, all I wanted to say was: Sieze the day!


Anonymous Anonymous said...

:( :( I'm sorry to hear the news. Sending my wishes and thoughts your way.

7:54 PM

Anonymous Anonymous said...

Big HUG from me, Joy!

12:05 AM

Blogger Christianne said...

I had no idea it was this serious. Praying for the best Joy...

6:02 PM

Anonymous Anonymous said...

Hang in there, Joy and Marcus. I dare say it'll be alright. Let's keep those hopes up. Hugs, Lai

11:56 AM

Blogger Leplume said...

Keeping you both in my thoughts and keeping my fingers crossed that all of this works out! Hope is a powerful thing! Hugs from a reader you've never met in a country far from where you are. :)

4:36 AM

Anonymous Lara said...

joy, sent you an email in yahoo just now. (((hugs)))

3:26 PM


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